Educational Resources

Educational Resources

Education is one of the most important components of treatment.

Being an informed proactive manager will greatly assist in making informed decisions on management of ME/CFS through various stages and over time. It will enable you to provide feedback to develop partnerships with healthcare provider teams.

Under Australian Medicare, management is coordinated by annual care plans and management with agreed goals and outcome-focused measures. ME/CFS management incorporates both medical, allied health and lifestyle interventions.

The South Australian ME/CFS Patient Education Model incorporates both the Stanford and Flinders Chronic Disease Management Program approaches. It includes structured self-management programs, resources and modules that will enable the acquisition of the skills and knowledge needed to make informed decisions. Activities also provide opportunities to meet others in similar situations.

Core topics include pacing and lifestyle management with monitoring to link symptom levels and evaluate treatment outcomes. Interventions to break the symptom cycles include individual sleep, movement, exercise, stress reduction, and dietary approaches, as well as combined multidisciplinary approaches to pain and fatigue. Management is tailored to each individual using the start low, go slow methodology.

Patient Information Sheets – Introductory Series on ME/CFS Management & Care Planning download here

  • What is ME/CFS? Part A
  • What is ME/CFS? Part B
  • What is ME/CFS? Part C
  • Understanding the Diagnostic Process
  • ME/CFS Canadian Multi-Symptom Questionnaire
  • Newly Diagnosed Part A
  • Newly Diagnosed Part B
  • Newly Diagnosed Part C
  • Newly Diagnosed Part D
  • Management, Monitoring & Communication
  • ME/CFS Cycle of Care
  • ME/CFS Management Care Plans
  • ME/CFS Working with Your Health Care Team

Management Workshops

For more information on the programs available

The South Australian ME/CFS Cycle of Care Program provides core chronic disease management interventions for Case Managers and patients to monitor and demonstrate proactive management and coordinated ME/CFS multi system care over the 12 month period of an Annual Medicare Care Plan.

This Annual Cycle of Care checklist program has been developed to support patients requiring management documentation for Centrelink and NDIS.

There are 12 Management and Education topics covered in the following health coaching resources:

ME/CFS Annual Cycle of Care Series workshops

  1. Monitoring
  2. Pacing
  3. Sleep
  4. Stress
  5. Rest
  6. Fatigue
  7. Nutrition
  8. Cognitive issues
  9. Mental Health and Wellbeing
  10. Pain
  11. Movement/Exercise
  12. Medications

Other Resources include