The Australian Collaboration Project for Fibromyalgia Best Practice and Education established in 2000, is a national alliance of agencies working to provide Australians with current best practice information, treatment and management for Australians with Fibromyalgia Syndrome (FMS).
Since 2000, the team has worked to represent Fibromyalgia in a variety of chronic disease management reform initiatives. These include facilitating participation in self-management programs, monitoring health outcomes and improving information on the management of Fibromyalgia.
Project initiatives have included:
- improved information for providers by distributing and evaluating the Canadian Fibromyalgia General Practice Guidelines;
- promoting evidenced based approaches for the management of Fibromyalgia;
- evaluating Patient Self-Management Programs, both generic and Fibromyalgia specific;
- evaluating a 3-hour Fibromyalgia introductory or add-on educational module, “Lay Person’s Guide to Living with Fibromyalgia”;
- facilitating patient support through one to one and group activities and educational resources.
Current initiatives include:
- the establishment of a demonstration clinic
- the validating assessments, care planning and care pathways
- research to validate the latest tests from overseas
- improving diagnosis and early intervention to limit the condition
- a website providing information to support best practice care for Australian primary care settings;
- educational programs
- activities: group, telephone, social media
- sentinel site for Fibromyalgia